Wednesday, February 27, 2013

Happy Birthday Hannah! Riley GI update!

I'll have a very special, picture filled post tomorrow morning but, wanted to stop in and give you a little Riley update.

She finally made the trip over to CHOC today to see her GI doctor.  All is good in her abdomen.  No blockage or issues.  The GI doctor thinks they haven't been feeding Riley enough and by slowing down her feeds they've actually been messing with her tummy.  Not exactly the medical terms she used but you get the point.

So Riley will now get her 100ml (about 3 1/2 ounces) over a 15 minute period in a bolus.  Basically, an over sized syringe.  She'll get her feeds every 4 hours and the night feeds will be stopped at 10pm.  She'll start her morning feeds at 6 am.

So far so good!  2 feedings since she got back and she's tolerated them just fine!  She is still gassy but, that is natural and actually slowing her feeds probably slowed her intestines.

We hope this is it!  Really, truly to have this figured out will be such a blessing and relief for Riley!

Dave also made Riley's next appointment to get Riley's "button" put on.  Basically right now she still has a tube that comes out of her tummy.  Her mickey button will allow her to wear onesies and normal clothes again when she isn't feeding.  She'll go back for that procedure on March 22nd.

So it's been a good day although, I think the trip in the ambulance and waiting for the doctor wore her out!

I'd also like to wish a very Happy Birthday to Hannah, our babysitter/nanny whatever she wants to be called! :)  She had Mason today for part of the day so hopefully he was a good baby for her.

Meeting Hannah months ago with her mom in the Methodist cafeteria was such perfect timing.  Hannah is wonderful with all of our children and has always had a special bond with Riley. 

I hope that when Riley gets older she will be just as sweet, sincere, caring and thoughtful as Hannah is.  She's set the bar pretty high!

Happy Birthday Hannah!  Thank you for everything you've done and for being a part of our lives! 

Dave, Megan, Logan, Mason and Courageous Riley!

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