Family Time

 

I think our weekend can best be summed up with some pictures! 

Friday morning PT!

Resting on her knees in a squat position.

 

Friday afternoon lunch date with mommy!

 

Hi sissy!

 

Want my shoe?

 

Or perhaps my recorder?

A smile with kisses from big brother!

 

Cartoons with my 3 babies!

 

Hey there Luke!

 

Cheese!

 

Kisses for baby Luke!

 

Sweetest sleeping baby!

 

Sleeping on Grammie!

 

Pool time!

 

Cheese!

 

Love him!

 

Chillin with Pa Doug!

 

Mmmm... Smores!

 

Outside with mommy!

 

Trying to get a cousin pic!

 

Sassy cousins!

 

Happy Birthday Uncle B-rad!

 

Cousin pic attempt #1

 

Cousin pic attempt #2

 

Cousin pic attempt #3

 

Cousin pic attempt #4

 

 

We had a wonderful weekend filled with family.  Riley did great in PT on Friday and also had Visual Therapy and ST.  She was tired Friday night!  I always worry about back to back therapies but, in all honesty I think she NEEDS it!

 

Saturday morning we continued our new tradition of having family time together around breakfast.  The boys are loving it and so is Riley.  Mason brought her one of his shoes and his recorder.  It's cute when he's trying to share.  Logan gave Riley lots of kisses and her happy smile was very evident.  Before Mason's nap all 3 kids watched some cartoons together.  It was the start of a great day.

 

Saturday afternoon Uncle Brad, Aunt Kara, Molly and Baby Luke were over for a bbq along with Grammie & Pa Doug.  I know we all loved every minute of the afternoon.  Luke is so cute and snugly and I really enjoyed the baby squish!  Molly is adorable, talkative and hilarious.  She had Logan in check!  Seeing Logan and Molly and even Mason play together was priceless.  Molly and Logan cooked  smores over the fire after dinner and Mason couldn't get enough of the marshmallows and chocolate.  Riley was able to hang out with us and we even attempted a cousin pic.  Harder then it looks!  I'm hoping my mom or Kara got some better shots.

 

We can't wait to see them all again!  And with the McEachern's back in CA it will be  much easier to make that happen!

 

Yesterday we recovered from our weekend and prepared for the week.  Sunday nights are always very anxious for me and I usually don't sleep much.  I always worry about what the week has in store for us and hope that I've put everything in to place!

 

We started off the week with a visit from the communication specialist from the school district.  She'll be coming Monday mornings to work on skills with Riley and our family.  Today I wanted Logan to be involved and learn a few signs.  Since he'll be headed to Kindergarten (did I really say that?) next week I figured today was a great day to get him involved.  He learned "twinkle, twinkle little star" and I'm anxious to see how he does signing and signing to Riley tonight.

 

Riley is doing well.  She hasn't had any noticeable seizure activity over the weekend.  At least nothing that required her to have any Ativan.  She'll be busy this week and we'll be up bright and early Thursday morning to head to the sedated hearing exam at CHOC.

 

Speaking of CHOC.  I know it may have been confusing but, if you'd like to join us for the CHOC Walk please use the link below to register for Team Riley.  I've been told this event fill sup fast and I don't want to miss out on having as many people as possible there to walk along side our little fighter.  It does not cost you anything to register.  They ask that you raise $50 and if you are unable to do it before the walk you just pay the $50 the day of.  You'll get a shirt and a few other goodies.  Children under 2 do not have to register.  If you want them to get a shirt though you'll need to.  Tickets to Disneyland are NOT included but, they will be selling discounted tickets that day.  We really hope you can join us on October 13th!  If you have any questions feel free to email me!

 

CHOC Walk

 

Again thank you for your prayers, thoughts and words of encouragement.  This road is not an easy one and I don't think it will ever be.  We try to do our best for Riley and for the boys.  I think we're doing ok but, there are days that leave us defeated and down.  We've learned to let those days come and go and re focus our energies the next day.  Our focus right now is on making this new normal as manageable for ALL of us and making sure all of our children know how special they are to us.  We have to remember that for every bump in the road there will be a great milestone or advancement.  We've already seen it happen a few times.  For Riley and Logan and Mason we have to Fight On!

 

Love,

Dave, Megan, Logan, Mason and Courageous Riley!