Thankfully, things are going great for Riley. We headed home Friday early afternoon and Riley rested all weekend without any complications. Friday evening I had a phone call from Dr. Niparko as he stepped off a plane in Denver to visit his mom. Really showed me through his actions that this was all meant to be. Knowing we had his cell number "just in case" helped us all rest a bit easier this weekend.
We'll head back to the audiologist at the John Tracy Clinic (coincidentally right behind my sorority house at USC) in 3 to 4 weeks. It's at that time that they will begin to program Riley's CI. While we don't know that this will work, we do know that so far everything is looking up. Now we just hope and pray the implant can provide assistance to Riley. I had a friend mention that we shouldn't expect the "You Tube" moment when we turn Riley's implant on and all of the sudden it's like nothing ever happened and she's hearing and talking again. We're being very realistic in knowing this is going to be another long road for Riley. Getting a CI takes a ton of dedication and work on both the patient and support system parts. For now we are continuing to learn as much sign language as we can and will be prepared to start 2014 with many Singing Time videos and other tools to help us help Riley. One day at a time....
Friday night Tia T, Uncle Mike and Mia came over for dinner. There is nothing like an almost 2 year to really show you that kids don't see disabilities or differences. The first thing Mia does when she comes over is head straight to "RyRy's" room. A part of me aches inside as I wonder what could have been but, the love that she shows to Miss Riley is so innocent and real. We could all learn a thing or two from the little people in our lives.
Before they came over we headed to Costco to stock up on some necessities. While we were there an older gentleman approached Mason and handed him a $1. Just because. He had a stack and was walking around the store giving them to kids. All around us the spirit of the season has been evident and little gestures like this have really helped to keep us in the Christmas spirit.
We stuck around the house this weekend to make sure Riley was healing well. We did sneak out for a couple hours on Saturday night to see Pa Doug's new Woodie. It's all Logan can talk about! Merry Christmas Pa Doug!
As we get ready to celebrate Christmas we're scrambling like every other parent to wrap all the presents and make sure everything is ready for the big guys arrival. We'll visit with Santa tonight (better late then never???). We really wanted to avoid the mall Santa due to flu season and Riley's compromised immune system so I am grateful for the opportunity to visit Santa in a more intimate setting after my families celebration together tonight.
Although we will enjoy celebrating and spending time with family and friends we also know what lies ahead. It's hard not to. The memories are still so vivid and raw. But, for now we will cherish the moments we have together. And celebrate the fact that we are all together on this special day.
It's been a year we will never forget.
We wish you all a very Merry Christmas!
If all goes as planned I'll be back on Thursday with a very special video to share.
Hug your babies, tell those that you love how you feel and remember to always Fight On!
Love,
Dave, Megan, Logan, Mason and Courageous Riley!
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