Summertime, patience and the 2014 CHOC Walk

We're definitely in the middle of summer around here!  Most of our afternoons are filled with swimming and backyard time and the weekends are spent basically living in the pool and around the bbq!  We've learned to embrace the fact that we don't get the chance to go too far from home.  And we have an amazing family and group of friends that join us on the weekends to "hang out".  Logan is now a little fish swimming everywhere in the pool and begging to not get out!

We've also been busy with birthday parties, get togethers and 4th of July.

We're still in limbo mode as far as when we will head inpatient to get going on the keto diet.  We'll either be heading to CHOC 7/21 or 8/18.  We are pushing for 7/21.  It's SO SO hard waiting.  Especially since Riley is still having the "S" words daily.  In fact on 4th of July she had a pretty bad one at our framily gathering.  I suppose we've become semi used to them but in the past whenever she's had a series of "S" words or couldn't stop them we were immediately changing paths and finding a solution.  Patience is not my strong suit!

So we're doing what we can for Riley.  Our parental instinct is telling us that these are much more common when Riley is hot, around strangers or away from the comfort of her own home.  It just seems that any of these situations can exacerbate her "S" words.  So we wait and are still hoping and praying that the Ketogenic Diet is what makes a difference for Riley.

In the meantime Riley is working hard!  She is amazing us in therapy and continues to show us that persistence and patience are key when it comes to Riley.  We caught her on video the other day showing us what she could do while in the stander.

Riley playing with her piano

Riley continues to work on new things in PT.

 Spending more time on her stomach.

 Today she was having an "on" day with her visual therapist and was tracking a ton.  She even wore a  "patch" on her strong eye to help strengthen her weak eye.

It amazes us daily what Riley is able to do and when she does something new, no matter how big or how small, we celebrate.  She's making this progress while waiting to take care of the "S" words and being heavily medicated.  Riley is a mighty fighter and gives us strength on days when we feel like we've had enough.  Just one snuggle session with Riley can cure anything!

We are also happy to announce that we will be participating in the 2014 CHOC Walk.  Last year our little team came in 5th place overall and Pa Doug was 2nd place overall for individual participants.  Made me super happy especially since we joined in late August and had no idea what we were doing!

Well now we're veterans!  Haha.  Not really but, we know what to expect.  So, will you join us?  Whether you are in the So Cal area and can join us by walking on Sunday October 12th or live elsewhere and want to help support our team.  We will be changing things up a bit and doing some creative fundraising ideas in the next month or so.  I'm still putting everything together and will share soon what we're hoping to do.  We'll also have a new fresh batch of "Team Riley" shirts available in the next few weeks.

I'm sure I said it last year but it's worth repeating.  From a very young age my parents taught my brother and me the importance of giving back.  I had always wondered what my "cause" would be and what I would be drawn to.  Through Riley's illness we have been drawn to giving back to CHOC.  Eventually, we hope, that Team Riley can do even more beyond CHOC but it will be a while before any of my crazy ideas get off the ground!

CHOC and the PICU teamed saved Riley's life.  The feelings of gratitude we have for the care Riley received are hard to verbalize.  To this day, as you know, most of our doctors are through CHOC and we are frequent visitors to the hospital.  We feel "at home" at CHOC.  Just one visit to another hospital and we are reminded of why we are so thankful to live near CHOC.  Shoot the valet guys even know me by name and are always there to greet us no matter if we're coming for an appointment or for a short stay.

To join us in walking you can click the link below and it will take you to the Team Riley page.  The minimum amount that needs to be raised in order to walk is $50 by October 12th.  The money can be raised through donations or paid directly to CHOC the day of.  We hope to see you there!
Join the Team Riley CHOC Walk Team!

We'll have our individual pages set up in the next few days.  I will include the links next time.  We'll all be walking in support of this great hospital and hope that Riley will be able to join us this year!  (Last year, much to our disappointment, Riley was inpatient and unable to walk).

Fight On!

Love,
Dave, Megan, Logan, Mason and Courageous Riley

One Day at a Time

We had a great time Friday celebrating Mason and Riley turning 2!  We were able to take Mason to lunch at our favorite mexican restaurant on Friday and he enjoyed every minute of his one on one time with mommy and daddy.

Yummy!

Riley had a great day as well and even got the day off from therapy since the weather was so crazy! We ended the day with pizza and cake with the grandparents.

Hi Pa Doug

Riley even tried some frosting :)

Frosting

The official birthday party is this weekend and I have never been so happy that we chose this weekend over last as it was rainy and cold and we probably would've had to cancel!  We also started to notice that our windows were leaking and it was creating quite the mess with all the rain we had.  Now that we've dried out a bit and we're expecting 80 degree weather n Saturday we're hopeful that everything will go as planned.

Hi sissy want to play with the puppy?

Monday I took Mason to the pediatrician for his 2 year old check up.  He'll be starting "school" tomorrow (2 yr old preschool 2 days a week) and we needed him to have his check up before he started.  The appointment didn't go as well as I expected and I am still trying my hardest to not think about the what ifs.

Dr. Mason

 Mason has a heart murmur.  The pediatrician noticed it at his 18 month appointment but, wasn't overly concerned.  Well on Monday it was more noticeable and so she's referring us to a cardiologist.  These two are going to turn my whole head of hair grey!  The good news is Mason is thriving.  He's 35 inches tall and 29 pounds.  He's hitting his milestones and doing everything he should be doing at 2.  So while all signs point to this being insignificant it still leaves me unsettled.  We'll see a cardiologist in the next month or so.

Last week Riley also had another appointment with her audiologist.  She's doing really well with her implant and had definite reactions while the audiologist was testing the channels in Riley's implant.  We go back again in April and at some point in the next few months they will have Riley back in the sound booth to see what type of response Riley exhibits now versus before the implant.  Remember Riley isn't hearing like you and I do so much of what she's doing now day to day is helping to train her "ear" to hear certain sounds and identify with them.  We've been encouraged to use baby talk around her and repeat things over and over in a sing song fashion.  Similar to the natural actions you'd have around a newborn baby cooing and what not.  We're still amazed with the difference in Riley's face while she has the implant on.  We know she appreciates being able to hear sounds even though I am sure there are times she's like to tune us all out.

With all of her babies!

We also met with Riley's ENT doctor last week and have a tentative plan in place for removal of the granuloma.  She's scheduled for surgery at the end of March (we may push it back one more week just so we're out of the official Flu season).  When the doctor gets in to the OR and if he is able to remove the granuloma without opening up Riley's stoma site it should be an easy procedure.  If he is still unable to get to the granuloma like last time and needs to open up the stoma site it will be similar to the surgery when Riley's trach was initially placed and may get Riley a ticket to being inpatient for a few days.  Because of this possibility we are trying, as best we can, to plan around flu season.  Once this procedure is done we can begin to work on other therapies.  Feeding, swallowing etc.  Until the day that Riley is dencannulated (and yes I do believe that one day in the future she will be) the granuloma has the possibility of growing back.  It's the nature of the beast as the trach is a foreign object that Riley's body is trying to expel and with that comes the scar tissue.

Sleepy baby in her new jammies from Grandad and Grandma.

Sometime in the next couple of weeks Riley will have another round of Botox and hopefully the stander we ordered will be here next week so we can start to use that again with Riley.

In the meantime we're busy with life in general and trying to just take things one day at a time.  Mason's diagnosis hit me hard.  Even though we knew about this 6 months ago I put it in the back of my mind because until it was time to worry I really didn't have the emotional energy to add it to my list of anxiety producers.  For now I will continue to look at the patient (Mason) and remind myself that he looks good, is doing well and is growing as he should.  Hopefully this will just be a blip in Mason's year and it will turn out to be insignificant.  If not... well there is not a "if not" right now in my mind.

Fight On!

Love,
Dave, Megan, Logan, Mason & Courageous Riley

Hospital Day 4!

First, we have to thank ALL of you.  Sometimes I feel like we ask so much of you all.  For prayers, thoughts and support.  And every single time you are all there to hold us up.  My friend Kristi always describes the support they receive while on their journey with their daughter as their village.  I can truly say you are all our village.  Today has been an extremely emotional day due to multiple things.  We are happy to say though that our Little Miss has once again amazed us and is doing well.

This morning Riley's heart rate was all over the place.  I think for 2 hours straight she kept the monitor beeping every few minutes.  She was sleepy so a lower heart rate isn't unusual but, this was the type of sleepy that comes in the middle of the night.  Even when I tried to annoy her, for lack of a better description, she still stayed in the low wonky heart rate range.  Kept this mama on my toes and of course had me fearing the worst.  Just a natural reaction I suppose.

We had the sweetest nurse the last 2 days, quite the cheerleader for Riley in fact.  Even she was worried.  The attending pediatrician came in while Riley was messing with the monitors and had the "room" (techs monitoring the continuous EEG) check to see if there was any correlation with Riley's weird HR and her EEG.  Nada.  So, she ordered an EKG.  All along we have been so happy that all of Riley's major organs function fine so the worry that overcame me when I thought of the what if's was huge.  Deep down though I really thought it was probably just because of all of the medication in Riley's system.  Like I said last night she is sleepy!!!

EKG was normal.  Labs.  Well labs showed her Depakote level at 62.  Yeah 62.  We were not expecting that.  Last night they were at 136.  They are aiming for a level between 100 and 125.  So we have a ways to go....

Riley's seizure activity has calmed down.  The only thing showing on the EEG is a very small electric seizure that is not having an effect on her outside her brain.  Sort of like electric charges here and there.  I asked if these would have any long term effect on Riley and the general answer is no.  Riley has brain damage.  She has areas that will have this type of activity because of what she's gone through so... I suppose this is the best case scenario???  I mean they've figured out how to control the infantile spasms (IS/ACTH) and now the tonic/clonic seizures (Depakote) so I suppose we should be happy????

My biggest gripe with these meds is the state Riley is in right now.  Tired, sleepy, lethargic.  And I told the neurologists point blank that I really hope this isn't how she will be moving forward.  I've been promised she will get used to the meds.  And they have been super loading her to get her levels up so it is to be expected.  I can't stress enough that for Riley to progress she can't be this way.  And for Riley to live in life she can't be this way.  I believe I used the term "quality of life" and "future" multiple times today.

I still know deep down that most of these doctors don't see much potential in Riley.  I mean if I tell them she's smiled, rolled, held her head up etc. they still look at me like.........crickets.  I really should have busted out the video today.  Too many other things on my mind though!  And I'm ok with this.  She's already amazed them so I have faith she'll continue to do so.  It's just what she does :)

This is where the nurses are little angels.  They see these cases so much and have been able to tell us what happens after seizures are controlled.  And, they see progress.  Even the attending neuro I spoke to today agreed that a bit of regression therapy wise was expected but, Riley should pick right back up where she left off.  So maybe, just maybe, I should give her a bit of credit for being semi positive.... Most doctors with "neuro" in their title just aren't positive.  That's just the reality of what we've dealt with. 

So, because the EKG was good and because we are just waiting now for the med level to get to where it needs to be Riley, got to get the head wrap off.  Problem is that thing is HARD to get off!

I worked with the tech first to get the electrodes off (took some tangle spray and waterless shampoo) and then let Riley's hair soak in the detangler.

Once that set in for a bit we gave Riley a bed bath and I worked on each electrode spot one by one to get the gunk out.

For the most part Riley's hair is gunk free but, it will probably be a bit before it is all completely out.

Riley's looking better and her swelling is subsiding.  Now we pray, hope and cross all of our crossables that tomorrow is homecoming day!

Thanks again for your support!  And remember to hug those you love and tell them you love them tonight.  We've been reminded how precious life is today and we're thankful we still have Riley here to fight for.  It's something we will never give up on....  Ever.

Fight On!

Love,
Dave, Megan, Logan, Mason and Courageous Riley!!!

Hope

We had a great semi normal weekend last weekend.  Filled with family, friends and fun.  It was nice.  I'm exhausted.  But, I'm grateful for the memories that were created. 

Last Thursday we headed here:

It's no secret that I LOVE my Trojans and Trojan Family (yes it does exist) and so ending up at Keck with Riley was relieving.  Why?  Because after months of wondering when? where? how?  we finally landed somewhere that will be able to help Riley with her bilateral Cochlear Implants.  I can't even tell you the number of times I've cried, vented, called, tried.... to just make this a reality. 

We met with Dr. Rick Friedman.  And just as his bio says he is one of  the nicest  and easiest to talk to doctors I've met in a while.  When he asked if I had any questions I let him know I had done a ton of Dr. Google research.  He then asked if he checked out ok.  He does.  He has a ton of experience and passion behind what he is doing.  Doctors like that are the ones you want to be in front of and want on your team.  My only nerves that day came from navigating the parking structure.  Really, trust me, if you'd driven around the parking lot maze like we did for 37 minutes (yes, I timed it) looking for a parking spot, you'd understand!

If all goes as planned, Riley will have her CI surgery on December 23rd.  The best Christmas present I have ever received.  Really.  Now we just need to get past the ACTH and hope that all goes well with that and we're good to go.  And..... Riley will be the 1st ever Pediatric CI at USC.  That my friends gives me chills.  The excitement I had walking out of that appointment really helped set the tone for the rest of the weekend.  We are so thankful to each and every person that is helping to make this happen.

Friday morning Riley had PT and she jumped right back in.  Her therapist had her on her knees and arms practicing lifting her head up and she did this:

Riley trying her hardest to lift her head,

Holding her head up with some support.

Friday afternoon I ran over to Logan's school to join his class for the October birthday celebrations.  There were 4 birthdays in the class in October and Logan had been waiting since September's celebration for his party!  He really is my child, making his birthday last all month long!

 

Mmmm cupcakes!

At the front of the class with his birthday balloon!

Friday night we were able to meet up with Tia T and Uncle Mike for the Zac Brown Band concert at the Hollywood Bowl.  Grammie (my mom) came over to stay with the kiddos and hold down the fort so we could get out for some grown up time.  It was a blast and a night we'll remember for a long time.  I really wish we could make these "date" nights a more regular occurrence.  And trust me we try! 

Saturday morning we headed home early so I could grab Logan and head to the USC game.  Logan was so excited about seeing Traveler and the guy on the horse (Tommy Trojan).  We met up with Grammie, Pa Doug, Uncle Brad and Molly before the game and Logan and Molly had a blast playing around together.

Best Cousins

Cheese with Grammie

Tallest to shortest with Pa Doug

 

Seriously!!!  Where did this big kid come from!

Game time with mommy

I've missed this view!  Finally at a home game!  My happy place!!!

I absolutely love that Molly and Logan just adore each other.  Logan was so worried about Molly holding his hand and staying close to us!  Our seats are a couple tunnels away from my parent's and by the end of the 1st quarter Logan was anxious to get back to watch the game with Molly.  There happened to be a few seats open around Grammie and Pa Doug (not a surprise to those following college football :() and so Logan was able to watch the rest of the game with Molly.  I'm thrilled I decided to go to the game and take Logan.  He had a blast and is turning in to quite the USC fan!

Sunday we headed to our first Halloween activity which was Trunk or Treat at Miss Mia's preschool.  Batman and Robin were adorable and although we missed being able to bring Riley (crowds are not good for her) we still had fun.

Batman and Robin!

Mason learning how to "Trick or Treat"

Smiles with Mia

Yesterday Logan had his first field trip to the Pumpkin Patch.  I was so happy that I was able to attend and watching Logan and his classmates together is hilarious!  Those kids have some energy.  The rain held off just long enough for us to take the tractor ride, visit the animals in the petting zoo and have a quick tour of the park.  The trip ended with the kids picking out small pumpkins and decorating them.  Being the daughter of the ultimate PTA mom I've always wanted to be able to do the same for my kids so,  it was nice to be able to participate and be there for Logan.

More selfies with Logan

Yeehaw

Some of Logan's K friends

Today we had an ophthalmologist appointment and all went well.  We take Riley to The Center for the Partially Sighted and everyone that works there is just wonderful.  The doctor that Riley sees lost his own sight a few years ago.  He works with an optometrist and uses his computer to notate what is going on during the exam etc.  He explained Riley's actual vision to me today which I found interesting.  I was under the impression that Riley could not see out of one eye at all.  This isn't the case.  Without glasses Riley sees everything very thinly.  The example he used is that a 32 inch door opening looks like 12 inches to Riley.  Being me I joked that Riley thinks her mom is skinny!  Her glasses help to correct this and make things look like they normally would.  Once we get the written report from them I will have to consult Aunt Kara (my SIL) to have her explain to me more what it all means.  They were throwing around terms I have never heard of.

Tomorrow Riley has Visual Therapy, PT and ST.  It will be a busy day! 
Riley is doing ok right now.  Riley's ACTH dose was cut in half on Friday.  Unfortunately, with the dosage decrease Riley has started back with her seizures.  Not as severe at all.  Much shorter.  But, they are still back.  I am anxiously awaiting a call back from her neurologist's office to see what's next?  Dosage increase?  Office visit?  I'm just not sure.

Friday we'll have a repeat EEG.  I'm hoping it goes well.  I say hoping because the last time we had a routine EEG we ended up inpatient for 6 days.  We're still not recovered from that stay and would really like to avoid being inpatient for a while!

Queen of the side eye!

After all of that I am ready for a nap!  I will admit though that it was nice this weekend to feel "normal".

We hope you all have a very memorable and Happy Halloween.  Fight On!

Love,
Dave, Megan, Logan, Mason and Courageous Riley

CHOC Walk and ACTH

**** Meant to post this last night and then fell asleep mid-post!  I know if I don't get this up it may be awhile before I can write another one!  We're waiting on a UPS delivery of Riley's meds and then we'll be headed home!!!****

You know those days when you are so exhausted you don't even know how you are going to make it to your bed.  Yesterday was one of those days!  Heck, I think I am still tired today.  However, my heart is so full and I am so happy we were able to be a part of something truly magical. (As cheesy as that sounds)  In fact, we're already talking about next year!  And the best news from today is that as long as everything goes as planned Riley should be home tomorrow!!! 

Riley is doing really well!  The ACTH is working from what we can tell so far.  This is such a relief.  But.... Riley is starting to feel some of the side effects.  We've termed this "roid rage". I had to step out of the room tonight for a bit of a breather because it is really hard to watch.  She can't get comfortable and tones and flexes until she is red faced. I don't know how we are going to get through 8 weeks of this.  However her startle seizures (IS:Infantile Spasms) have become fewer and fewer and without jinxing anything I think... just maybe we've crossed over to a new baseline.  Riley's phenobarbital will be increased a bit as well.  Last night she had an extra large does to load her up. Please continue to join us with prayers and good thoughts and whatever you have to help keep this positivity going!  And to help get us through the next 2 months.  I just keep reminding myself that this is best for Riley in the long run.  It's the unknowns that are leaving me a bit on edge though.   But, we'll power through this just like everything else and just take each day as it comes.

Yesterday was THE CHOC Walk.  It's been a crazy couple of days but, the memories that we made are priceless.  Simply wonderful.  And, because we decided with Tia T and Unlce Mike last minute to get rooms at the Hilton near Disneyland Saturday night the memories will continue for years to come.  It was, hands down, one of the best times we've had with the boys in long time and add in Miss Mia, Tia T and Uncle Mike and we now know we need to do something similar again.  Logan was SO excited to stay in a hotel and both boys loved playing around and exploring every nook and cranny in the room. 

Grandpa Hopper was able to come down to CHOC and stay with Riley so that this could all become a reality.  We always know when Grandpa is at the hospital that Riley will be taken care of.  It makes it so much easier to be away although I will admit that there were many moments Saturday night/Sunday morning that I felt sad.  We were supposed to be doing things with Mia and the twins and Logan all together.  Like we did last year when we all went to the pumpkin patch.

 

Those are the times that are hard for me.   When we're apart or doing things normal families do  my heart is definitely torn.  We were definitely missing a huge part of our family. 

We hit up Downtown Disney, without restaurant reservations Saturday night, yes I know all of you Disneyland lovers/planners are cringing.  Right around the time when I was ready to throw in the towel and just grab Mcd's we had a text from HOB that they had a table ready.  Thank goodness.  Mason without a nap is not fun!  Trust me!

After dinner we went back to the hotel and hung out before the fireworks at Disneyland started.  We had an amazing view from Tia T and Uncle Mike's room!  It was the perfect ending to a wonderful night! 

Yesterday I was up at 4am so that I could blow up the balloons we had for the walk.  Apparently Mason thought it was a good time to get up as well!  He's was in bed early last night.  4am is not good for anyone!

We had a bit of an issue with the valet at our hotel in the morning and I honestly didn't think we'd ever make it over to Disneyland.  Add in the fact that a zillion people were trying to get in to the parking lot at the same time and my anxiety was in full effect!  We made it though and met up with our amazing team of walkers.  The rest of the moring was wonderful, perfect.  Better then we could have ever imagined.

The entire event still leaves me choked up.  The support we had/have was/is amazing.  We've raised: $15,080 so far!  And I know we still have donations coming in.  How amazing is that!  For our first go round and deciding to walk pretty last minute I am proud of what our little team did!

Thank you to:

Alegria

Andy, Aimee & Sam Swanson

Anne Fisher

Annonymous

Annonymous

Augie flores

Aunt Kathryn

Aunt Kathy & Uncle John

Aunt Linda

Beverly Marksbury

Charles McCluer

Community Bank

Craig Schmidt

Craig Stewart

Deb Blanchard

Diana Cravotta

Doug & Jan McEachern   Escarciga family Eva Margueriette Gatt Family Gina Parrille & Family Grammie & Pa Doug Grandma Jan & Doug McEachern Jeff Jaramillo Jimmy Fahey Kari McWhirter Kathleen Malone Katie Figueroa Keri Sikich Kristen Hill Lindsay Jenkins Lindy Evans Lisa Mitrovich Marie McDuffie Mark & Joanna Crawford Mark Miskinis Mary McGinnis   Mike & Katie Shilling Patti Hegarty Penny Grund Roberto Gutierrez   Rudy and Beverly Hopper Sondra Stokes Sue Montgomery The Eggleston Family The Giordano's The Hopper Family The Kneiers The Leininger Family The McEachern Family The Puertas Family The Schmidts Uncle Ed, Aunt Toni, & Bailey Yolanda Agajanian and Family Chris Gallo Maria Sacco Steve Miller Felicitia Colon Naseem Waheed Ewa and Richard Shilling Jan McEachern Selena Miller Marty Salazar Matt and Dana Stanman Sue Seeker Leane Stephens Pat Seeker Looking around and seeing all of the teams and hearing about their stories made the day even more special. I also think it was humbling. To know we have Riley and we're still fighting is a good feeling. Some families don't have that option.  As we walked out of Main Street and past the infamous Castle we heard "was in a wheelchair last year and is walking down Main Street this year". It was hard to not be teary. So many inspirational kids/families all around us.   We also ran in to many of the special people that have been a part of Team Riley while caring for her at CHOC and Healthbridge.  Some of the most caring, special people we have met along this road.  I just wish we'd had Miss Riley with us to say hello!   I'll leave you with a little picture story of our weekend and wonderful day.  We're looking forward to making this an annual tradition and hope to add many more walkers to our "Team" next year!  Fight On!     Our reason for walking!  My hero Miss Riley Roo!!!  Riley got a CHOC Walk medallion and daddy got to practice giving her shot.   Before heading to the hotel we stopped by to see sissy!  The boys had the 5th floor playroom to themselves!  I'm amazed we were able to leave!       Downtown Disney fun!     Playing around in our jammies!  And... The Disneyland fireworks show!   Good morning Anaheim!!!  We're ready to walk!     Shoulder rides and walk fun!  Logan & Molly had a blast together! #memories     Checking out Disneyland!  Storm Troopers and Princesses cheering us on.     Grammie pushing the stroller!  Stroller dads!  One happy big brother!   Mia & Daddy (And some of our most favorite PICU nurses in the background!) Baby Luke walked too!  My love & rock!  More shoulder rides!     We made it to the finish line!!!!   Tired brothers!  The CHOC Walk is hard work!   Our amazing walkers!  The kindest, nicest group there was!  XOXOXO   Love, Dave, Megan, Logan, Mason and Courageous Riley            I think looking around and seeing all of the teams and hearing about their storeies was inspirational. I also think it was humbling. To know we have Riley and we're still fighting is a good feeling. Some pictires and stories broke my heart. But, as we walked out of Main Street and past the Castle we heard "was in a wheelchair last year and is walking down Main Street this year". It was hard to not be teary. So many inpsirational kids all around us. I'll leave you with a little picture story of our wonderful day. If you ever feel down or need a pick me up refer to this post. So many happy, wonderful moments with so many amazing people. Life really can be okay if you just choose to see the good all around you. Today was proof it does exist. I think looking around and seeing all of the teams and hearing about their storeies was inspirational. I also think it was humbling. To know we have Riley and we're still fighting is a good feeling. Some pictires and stories broke my heart. But, as we walked out of Main Street and past the Castle we heard "was in a wheelchair last year and is walking down Main Street this year". It was hard to not be teary. So many inpsirational kids all around us. I'll leave you with a little picture story of our wonderful day. If you ever feel down or need a pick me up refer to this post. So many happy, wonderful moments with so many amazing people. Life really can be okay if you just choose to see the good all around you. Today was proof it does exist.